National Tourette Syndrome Awareness Week 6-12 May 2018

National Tourette Syndrome Awareness Week 6-12 May 2018

 

Logo

Tourette Syndrome, (TS), is a neurological disorder characterised by involuntary, irresistible body movements and vocalizations. It is complex and individual in its effect.
See What is Tourette Syndrome? for a more detailed description.

 

An Introduction to life with Tourettes

The above video was created in 2008 by TSAA for our awareness campaign. As TS is 3 to 4 times more common in boys than girls and usually diagnosed around age 8 or 9, we focused on an 8-year-old boy to tell the story. We chose to portray a mild to ‘average’ case to counterbalance the more severe cases normally shown in the media. TS is a spectrum disorder making it important to represent the full range of cases. TS symptoms vary from mere aggravation to severe debilitation.

TS was first described in 1825 by French physician Itard in relation to a French noblewoman Marquise de Dampierre, who exhibited strange body movements and peculiar vocalisations and obscene remarks from the age of seven.

In 1885 George Gilles de la Tourette began research into Tourette Syndrome being the first to connect multiple, complex and varied symptoms forming a syndrome. Dr. Tourette named the syndrome ‘Maladie des Tics’ which was later named in recognition of his discovery and called ‘Gilles de la Tourette’ — so we have known about it for a long time, however even today it still remains misunderstood by many.

Appropriate medical care can help control symptoms, while understanding and acceptance can accomplish even more.